For John, acne keloidalis nuchae was connected to more than the visible bumps on the back of the head. In this chapter of The Baldcast, he tells Dr. Sanusi Umar how smaller bumps that once felt manageable changed as one growth became much larger, and how that shift affected his confidence and daily life.
When the Smaller Bumps Became Something Bigger
Dr. Sanusi Umar begins by explaining that John is among the few patients who presented with a rare combination of scalp conditions. He then asks John what life was like when those changes became apparent.
John says the smaller bumps still bothered him and made him feel self-conscious, but at that stage he could continue living his life. The turning point came when the bump began to change in size.
“When the bump started to morph into the big bump, that’s when it took a dark turn.”
A Loss of Confidence and a Search for Answers
As the growth became larger, John says his confidence dropped. He no longer wanted to go out or do the things he had done before. In his words, the situation “got bad quick.”
He sought help from doctors, but says the condition was misdiagnosed. He recalls being given medications and injections without the improvement he hoped for. Instead, he says, the problem continued to get worse and began to feel impossible.
Dr. U Frames a Rare and Complex Presentation
In the conversation, Dr. Sanusi Umar places John’s experience in clinical context by describing his presentation as a rare combination of scalp conditions. That explanation helps frame why John’s search for a clear answer had been so difficult, while keeping the focus on what John experienced as the condition changed.
The Story Continues
This chapter centers on the point when John’s experience changed from smaller bumps he could live with to a larger growth that affected his confidence and pushed him to keep searching for answers. His conversation with Dr. Umar continues beyond this moment, with more of John’s story still to come.
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Medical Disclaimer
This article describes one patient’s experience and is provided for educational purposes only. Individual experiences and results vary. It is not a substitute for personalized medical advice, diagnosis, or treatment from a qualified healthcare professional.
Further Reading
- https://dru.com/scalp-keloid-removal-john-journey/
- Umar S, Khanna R. Papular acne keloidalis nuchae treatment success using follicular unit excision. JAAD Case Rep. 2023 Jul 25;39:96-100. doi: 10.1016/j.jdcr.2023.07.013. PMID: 37621307; PMCID: PMC10445098.
https://pmc.ncbi.nlm.nih.gov/articles/PMC10904000/
